Why Young Tongues Exists

Tongue cancer is often thought of as a disease that affects older people with traditional risk factors. Yet an increasing number of younger adults are being diagnosed — many without any of the typical warning signs.

For those diagnosed at a younger age, the experience can be particularly isolating.

Support information is often designed for much older patients. Many people struggle to find others their own age who truly understand what they are going through. And the long-term impacts of treatment can affect careers, relationships, families and identity at a stage of life when people are still building their futures.

We bring together patients, carers, clinicians and researchers to build a global community grounded in shared experience, compassion and practical support.

A Community Built on Lived Experience

At the heart of Young Tongues is the belief that lived experience matters.

The wisdom shared by people who have been through diagnosis, treatment and recovery provides insight and reassurance that cannot always be found in clinical information alone.

By bringing together patients, carers, clinicians and researchers, Young Tongues creates a space where knowledge, understanding and compassion can flow in both directions.

This collaborative approach helps ensure that patient voices are heard not only within the community, but also in research, clinical practice and policy discussions.

Our Mission

Our mission is to provide global support, raise awareness and advocate for improved outcomes for adults aged 18 and over who were diagnosed with tongue cancer before their 65th birthday, alongside their caregivers.

Through our community, education, research collaboration and advocacy, we work to:

• Diagnose sooner by raising awareness of tongue cancer in younger people

• Support smarter by providing age-appropriate support and practical resources

• Change the system by advocating for improved care, policy and research priorities

• Lead with lived experience by ensuring patient voices help shape research, healthcare and support services

Together, these efforts help ensure that younger people affected by tongue cancer are seen earlier, supported better, and represented where decisions about their care are made.